5.25.2012

Southbound 35 - Morgan's Wonderland

Last week the Gray family loaded up and headed south. Our trip for Caleigh included a little R&R on the River Walk in San Antonio, a day at Sea World, and a short stay in Austin with friends. The big reason we made the trip was for Caleigh to be able to go to Morgan's Wonderland. 

After stops, eating and taking the scenic route, we made it to our hotel in about six hours. Caleigh did fabulous. This girl is made for travel. She rolls with the flow beaming with excitement the whole time. 

The first night we went out on the River Walk, and found a patio to eat on where Caleigh quickly made a few feathered friends. That night we all crashed around 10pm. It was a long first day. The River Walk, by the way, is just impossible with a wheelchair. We definitely got some extra walking in. We were constantly taking Caleigh out of her chair so that we could carry it up or down a flight of stairs. It was an experience though and I'm so glad Caleigh got to do it.
may1020858
 The second day was set for us to go to Morgan's Wonderland. She was excited. We had looked at the website before the trip, and we had really been talking it up. Caleigh wasn't disappointed. My first reaction was that this is just an overpriced park... playground even. The actual playground equipment was designed by the same company that did our local accessible park. So basically it was our park on steroids. The whole thing was very low key. A little anti-climactic really.
may1020903 may1020864
The longer we were there and the more Caleigh was able to actually do things herself; the more I realized this was a truly amazing place. I liked the calmness. I liked that nothing was rushed. The park was open from 10-2 that day and we did everything that Caleigh wanted to do in that time frame.
may1020931
Some of Caleigh's favorite activities were the ones that her wheelchair adapted too. Instead of having to get out of her chair, sit in our laps and leave her belongings behind; Caleigh was able to wheel onto the ride and go. Her favorite things were the wheelchair swing and carousel. Swinging is something that Caleigh enjoys daily, but she has never been supported this way before. The carousel is new to Caleigh. She really loved it and we lost count how many times she actually rode it.
may1030035
On the third day, we went to Sea World. This was a much different experience for all of us. The park was crowded, expensive and the "kid" part of the park wasn't even remotely accessible to Caleigh. Between potty breaks, medicine and feedings; the Sea World schedule of shows really didn't mesh with Caleigh's schedule. By the end of the long day, we saw three shows. We were on our way to the aquariums and dolphins when we were told that that section of the park was closed. It was a huge bummer because I think Caleigh would have really enjoyed it. We went ahead and left around 4pm feeling a little defeated with the day.
 may1030074
That same evening I asked Caleigh what she wanted to do the next day. We offered to go back to Sea World to see the aquariums and dolphins or to go back to Morgan's Wonderland. Without even blinking, she chose Morgan's. So the next morning we packed up the hotel room, went out to breakfast, did a quick Alamo walk by, and then checked out of the hotel. On our way out of town we went back to Morgan's Wonderland. Caleigh went straight for the wheelchair swings and then proceeded to alternate between them and the carousel. During a train ride, Caleigh fell asleep. We waited out the short nap and then wrapped up our visit with a few more carousel rides.
may3643
We made the short trip up to Austin where we stayed a few days with friends. We walked around the city, ate at a ton of great food places, hung out by the pool, did a little shopping and relaxed. I was even able to sneak away for a morning of quiet kayaking, which I'm totally in love with by the way.
may1030145
Our trip was quick, perfectly planned, and most likely the only one we will take this year. As far as Morgan's Wonderland goes, we will definitely return in the future. Caleigh still smiles when we talk about it. What a truly wonderful gift for our girl.

5.22.2012

Quickie Zippie Zone

It's been almost a month now since Caleigh's Quickie Zippie Zone manual wheelchair was delivered.
In a few words...we love it.
MAY1399 
  I've found that with each new piece of equipment that we get for Caleigh; we find out what is best for her. It seems to be getting a little easier to make decisions on positioning pieces, but it is still a large decision that we will have to live with for up to five years at a time.
MAY1404
The biggest decision that we made with this chair was make it a straight back, no tilt seat. This is big for Caleigh and her weaker head control. It was a risk that I'm glad we took. So far Caleigh has done well with holding her head upright, but she still does her low head tilt often. It's Caleigh's signature look; it's part of who she is and I'm ok with that.
MAY1410
A few things that I requested out of functionality and also just for plain good looks are the slim-line chest harness and the six spoke wheels. We went with the same headrest that we once used on her Kid-Walk. It's not so much for resting her head, but mostly for blocking Caleigh from hooking her head around behind it. So far this tactic is working wonderfully.
MAY1407 MAY1443
Caleigh and I took time to carefully pick out patterns from Grammie's Cricut machine to customize her new chair. I bought some vinyl and made the decorations. These should hold up to water better than stickers will. As you can see, Caleigh chose "toxic green" for the frame color. She is still big on loving the color green. I think it looks pretty cool myself.
MAY1406
Our DME also delivered a Stealth iPad holder for Caleigh's chair. This was a gift from the manufacture, and so far it's been the best one we have tried. Caleigh has been using Stealth products on her wheelchairs for years now, and they are very sturdy. This mount is no different. It's durable to Caleigh pushing and pulling on it. Movement is very little and we rarely have to tighten the joints. We are still working on the exact placement and angle, but Caleigh can carry on a conversation fairly well with it depending on her dystonia that particular day. So far she has asked strangers what their name is, told them "nice to meet you" and other appropriate conversation topics. At the same time, there are days that the iPad and Caleigh just don't get along. I modified our glue stick key guard to work on the new mount, and now it stays firmly in place. The only downside is that we can not have a protective case on the iPad while it is in the mount. This is fine for those that will leave it on the wheelchair all day, but we still use it outside of this scenario. It is easily taken in and out of the mount though. Having the mount in front of Caleigh, gives her something to push off of, which in turn, helps her hold her head up.
MAY1380
The chair is light weight and actually weighs less than the stroller type of chair we were using for awhile. Caleigh sits better in the chair with her AFO's on, but for these photographs we went with cute sandals. We've even made more adjustments to the chair and to the sandal straps since these photos were taken.

Our first real outing, was a trip to Whole Foods, in which I felt an immediate rush of pride for Caleigh and her new chair. I was standing taller, pushing the chair from the side, smiling at complete strangers. It's hard to explain, but for the first time, I had the feeling of pride with a chair. This chair fits Caleigh and her personality. I was thrilled that she was happy and it showed. So, yes, we love the new chair.

5.14.2012

Mother's Swim Day

Mayswim2
We spent a quiet mother's day hanging out at home. We swam, napped and swam some more. Perfect Sunday for this lucky mama.
Caleigh swimming with her new LJ-A swim float. She loves it so far.
Mayswim
Hope all you Mom's out there had a fabulous day too.