On Friday morning we packed up and headed down to Houston for the Abilities Expo. I had this planned for about two months. So I was excited to hit the road. We had been talking it up to Caleigh for awhile now. She was excited too.
The expo was just like any other expo/conference I had been to. There were vendors, dealers and vendors/dealers doing workshops. The cool thing about this one was the atmosphere. For us this wasn't about checking out the stuff. It was about exposing Caleigh to the world of people, just like her, with disabilities. None of us have ever been in a room with so many wheelchairs, and frankly, it was awesome.
Caleigh got to ride her very first tricycle at the expo. She loved it and kept asking for "more." We plan on trying to get her one. It may look like a regular tricycle, but of course anything disability related cost a fortune. This little bike is about $3500.
Today before we left, Caleigh got to ride the tricycle again. That time she yelled the whole ride because she was so excited. Caleigh wasn't making the pedals go on her own, but I think she could make it happen with practice. What a fun way to be a kid.
Eric sat and stared at this little number forEVER. He is convinced that Caleigh needs one. He made me take a picture of it. Apparently they are really popular. There was a guy driving around with his gun mounted on his. Maybe Caleigh can get the power chair driving thing down before we add a camo-gun-chair to the mix. ahem....
In the photo above you can see Caleigh sitting in a chair. It's called a Chill-Out Rock'er by Freedom Concepts {same as the trike people}. I loved the chair. Caleigh would need the next size up, but it looked so comfortable. I sat in a large one and it was comfy to me. I was all for having a chair that Caleigh could use in the living room while watching TV. This chair, of course, is about $600. When we went back to the hotel, Caleigh said she didn't like it and that it wasn't comfortable. So there you go. We saved 600 bucks. She doesn't want one.
I think we have found an iPad, tray, Tobii mounting system for Caleigh's power chair. It looks really promising and we hope to get it funded when/if we order the Tobii communication device for Caleigh. Base price on the mount is about $1200.
Caleigh got to meet Mrs. Amanda Hall. She is the current Ms. Wheelchair Texas. We talked to her for awhile and was pleasantly reassured that the Ms. Wheelchair pageants are not a Toddlers in Tiaras situation. The main reason for the pageant is to promote disability awareness and to have a positive role model out there. They also have a Little Miss Wheelchair. It's nice to know that something like this is out there just in case Caleigh wants to be involved some day. I don't think we will push or put her in the pageant, but it's always something to think about. Plus, she definitely has the hair for it.
I think Eric and I have narrowed down the adapted van that we will {hopefully} get, eventually. It was nice to see all of the modified vehicles and their different companies at the expo. We compared and picked up brochures and talked about details with the vendors. Just like the equipment above, we are looking at close to $60,000. For a van. A van. We can cut corners in some areas which might help that number a bit, but we plan on keeping the van until it dies. Hopefully 10-15+ years. The main thing that will push us to get a new van for Caleigh is air-conditioning. Our van has 5 vents and it just isn't enough to cool our easily overly heated girl. We added a clip on fan and that has helped some. When Caleigh's wheelchair needs a growth spurt we won't be able to fit it in the van anymore either. So there are issues, but right now we are liking our set up, especially for the price of free.
All in all, we had a great time. It was a quick get away with a purpose and we will probably go again sometime. Caleigh got a lot of attention for her curls and the iPad. It happens quite a bit here at home, but it was in overdrive in the crowded expo. We met very nice people and even got to see a few friends too.
We are so extremely happy that Caleigh was able to experience this weekend. I talk a lot about mine or Eric's acceptance regarding Caleigh's disabilities, but really there is an acceptance process for her too. Even though she is 4, we want to help her in knowing that she is awesome just the way she is, and just as important, she is not alone. Perhaps this weekend helped.












10 comments:
We're thinking about going to the expo tomorrow. Reagan was "off" on Friday and absolutely miserable today, so it's unlikely she'll be going, but my mom and I may try to sneak away for a bit tomorrow. Just an idea...Amtryke makes bikes for kids with disabilities and the one we customized for Reagan (with all the additional bells and whistles) is "only" $810. You submit some forms and which bike you want (with which modifications) and then they put the child on a wish list (the price they quoted was way lower than the price listed on the website). And there appears to be a lot of branches of AMBUCS in the Dallas area, so if you can get them to sponsor Caleigh, you could probably get it free! Just a thought...
Ok we must live near each other. I have probably inquired but forgotten. We are attending tomorrow and can't wait. It seems like so much to cover but hope I can check out all that I have listed. Thank you for giving us a glimpse of your get away.
Oh gosh. When we took Angela and get uPad mounted on her chair we had people stopping us every few feet. Adam and I joked that we should have just set up a table.
So glad you had fun. It is a very interesting thing -- going from being an outsider in a world to fitting right in. Wheelchair and equipment everywhere. Kinda cool.
Oh gosh. When we took Angela and get uPad mounted on her chair we had people stopping us every few feet. Adam and I joked that we should have just set up a table.
So glad you had fun. It is a very interesting thing -- going from being an outsider in a world to fitting right in. Wheelchair and equipment everywhere. Kinda cool.
We had such a similar experience. I felt the same way about seeing so many people in wheelchairs. I really think Wade took note as well. I really do think we both ought to invest in that nifty power chair and let the the guys take the kids out in the wilderness for a weekend. The time alone would be so worth the price of the chair:-)
I would love to do that sometime! How are you? Would love to catch up sometime.
So glad you had such a positive experience at the expo! Emma had tried the trike at our Expo and loved it but we didn't think we would ever be able to afford one. Then by luck a week later we were talking to our local Variety - The Children's Charity director at a fundraiser we attended and found out they love to buy bikes for our kiddos. We applied and were approved and Emma now rides her bike regularly. You might want to see if you have a local Variety chapter in your area that could possibly gift or help offset the cost of the bike for Caleigh. Good luck!
I think people that are on social assistance should get more money because people have to pay extra money for adapted equipment. I don't think it's fair that we have to pay more just because we have a disability. I wish the government would give more to funding this sort of thing. It's not like we chose to have a disability...
That seals the deal -- we've simply got to go to an abilities expo even though it means we'll just *have* to go on vacation! ;)
She looks so adorable in the trike and that camo gun seat thing is HILARIOUS!
Great family pic...last black & white on this post. You should totally frame it!
Love,
Stacey Danford
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